Ever have one of those days were you wake up and your whole life has change? I've had my share of life changing day, actually more than I would like. One I will never forget is the day I found out my mother has HIV. I was fifteen years old my mother and I were arguing over something not important enough for me to even remember now. In the burst of anger my mother shouts, "That’s why I have HIV." I replied back to her "I don't believe you." That's when she threw some papers and showed me what I call the "drawer". A dresser draw dedicated to medicine. I don't remember exactly what the papers read but it must have said something to make me believe her. I ran out the room and went to myself and just cried.
I was not one of those teenagers that did not know or accept HIV/AIDS. My mother always raised me to learn and never to judge people situations. So I knew a lot about how HIV was, so I thought. I knew how you could contract the virus, and all the mechanics of it. HIV is the Human immunodeficiency virus a retrovirus that can lead to acquired immunodeficiency syndrome (AIDS), a condition in humans in which the immune system begins to fail, leading to life-threatening opportunistic infections. Infection with HIV occurs by the transfer of blood, semen, vaginal fluid, pre-ejaculate, or breast milk. Within these bodily fluids, HIV is present as both free virus particles and virus within infected immune cells. The four major routes of transmission are unprotected sexual intercourse, contaminated needles, breast milk, and transmission from an infected mother to her baby at birth. One thing I knew nothing about it was the emotional factor. I have gone through KĂ¼bler-Ross model of five discrete stages. There was denial, anger, bargaining, depression, and acceptance.
I am now soon to be twenty-three, it has been eight years and an odd month since I found out my mother has HIV. I would say I am somewhere in between depression and acceptance stage. After years of turbulence between my mother and I, I have found out my mother has had HIV for 14 years that she knows of. I have watched this disease tear my mother apart physically and mentally. Watching this has torn me apart. I have finally accepted that my mother is dying of HIV and I cannot change that. I can change how I react and feel about it. I can educate people on what HIV/AIDS really does physically and mentally to both the carrier and their loved ones.
Writing 4 The Soul: Accepting My Mother is Dying from HIV
By Ready4AChange - Posted on March 23rd, 2008
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I work part time as a caregiver in an adult foster home for people with HIV/AIDS. Some of our residents have children, and I have always wondered what that it must be like to visit their parent in such a facility.
Does your mom have an AIDS diagnosis, or is she still at HIV+? I know it is a scary disease, and I know that every person experiences it differently, but many of my clients have been living with an AIDS diagnosis for decades...and I mean living, not dying. You know where your mom is on the spectrum; I don't, so I don't want to fill you with false hope if hope isn't warranted, but it doesn't have to be a death sentence. I hope the best for her and for you. Do you have a good support system for yourself? The long term effects of watching a loved one get sick and sicker can be debilitating. Take care of yourself!
It is admirable that you worked your experience into such a thoughtful and informative blog about a very important subject.
http://www.progressiveu.org/blog/ediblewoman
Thank you for taking the time to read my blog. It was very hard for me to write about it. My mother has not been with diagnose with AIDS yet, she is getting worse though. Yes, I have a great support system my boyfriend has been there since I found out. I hoping that this blog helps me as well as others.
So many people still see this a the "gay disease," so many straight people, especially teenagers, are lax about their safe sex practices. There's also the perception that HIV is somehow curable or manageable, like a cold. I pray that it will be cured someday, but it isn't yet, and I think your post gives good insight into the pain the disease causes for both the patients and the family members. Your post is very clear and informed. You did a good thing by writing it.
http://www.progressiveu.org/blog/ediblewoman
Sorry to hear about your difficult situation. I commend you for learning from the situation and taking the time to educate others about HIV/AIDS so that they will know not to judge others as well.
Great job, I give it 5 stars.
F*** Religion. Read more here:
http://www.progressiveu.org/020528-f-religion
Thanks for taking time to read my blog, and even taking time to give me any rating. I appreciate the support you extended to me.
I am happy that you were strong enough to discuss this sitituation with alot of people. This must be devastating and I am very sorry. Your mom can live a longer life than you think. Just be strong and be there for her. My mom had lupus and it might as well have been HIV. Not alot of people know about lupus so if you would like to read about it feel free:
Something people should know about:
http://www.progressiveu.org/032913-lupus-uncureable-wait-what
My mother suffers from Lupus as well, I believe that as women and people we need to be more informed on Lupus. I am trying to become a nurse I am reading many articles on it. Thank you for your support.